In the only newspaper a columnist on which could have drawn rapturous crowds of over 1000 in Middlesbrough this afternoon and over 1700 in Newcastle this evening, Lamiat Sabin writes:
Disabilities campaigners
will protest against the “very real dangers” of the assisted dying Bill as the
Commons votes on it, they announced yesterday.
Disabled
People Against Cuts (DPAC) said that legalising assisted suicide would “remove,
rather than give, choice.”
MPs
will vote on the divisive issue for the first time in 19 years on September 11,
when Wolverhampton South West MP Rob Morris’s Bill faces its second reading.
But
DPAC’s Ellen Clifford calls on supporters in an exclusive article in today’s
Morning Star to join it in protesting outside Parliament on that day.
“Before
we give disabled people assistance to kill ourselves we want the assistance to
live,” the group said.
“What
doesn’t exist for ill and disabled people is a right to independent living and
to the support we need to take part in society with the same life chances as
other people.”
The
Independent Living Fund gave disabled people freedom in choosing the care they
needed to be able to remain living in their communities — until the Tory
government ended it last month after 27 years.
DPAC
activists unexpectedly stormed into Parliament in June over the decision to axe
the fund.
A
similar Bill proposed by Lord Falconer, to allow severely ill and disabled
people to demand self-administered suicide drugs from doctors, is awaiting a
second reading by the Lords.
But
Lord Falconer admitted on the BBC’s Daily Politics that assisted suicide sought
to help people who felt that relying on others was “intolerable,” rather than
those mainly dealing with chronic pain.
Ms
Clifford argues that the Bills “trample all over the views of the people who
will be most affected by legalisation — health workers and disabled people.”
The
British Medical Association and Royal Colleges of Physicians, GPs and Surgeons
oppose the plans, as do 90 per cent of palliative doctors.
“An
‘assisted dying’ law sends the message that if you are terminally ill, ending
your life is something that it is appropriate to consider,” writes Ms Clifford.
“Meanwhile,
it encourages investment away from palliative care and treatment.”
Campaigners
raised the case of 64-year-old Barbara Wagner from Oregon, US, who was
diagnosed with metastatic lung cancer.
A
doctor prescribed chemotherapy but her insurance would not cover it. Instead,
she received a letter saying that the insurers would pay for assisted suicide
drugs.
Disabled People Against
Cuts (DPAC) is to be congratulated on its courage for battling the assisted dying
Bills going through both Houses of Parliament.
As Ellen Clifford notes
in today’s exclusive article for the Morning Star, there is a difference
between this campaign and DPAC’s superb work fighting Atos’s humiliating and
unfair Fit for Work tests or its heroic effort to save the independent living
fund, now removed by our hard-right government.
That
difference is that DPAC will find itself on the opposite side of the argument
from many of its natural allies on the left, who “tend to assume they are in
favour” of assisted suicide.
Clifford’s
wording is important here — “tend to assume.” She is right that there is a real
danger that the left sleepwalks into endorsing a change in the law on
euthanasia without carefully considering its implications.
That
risk is heightened by the bizarre timing of the second reading of Rob Marris’s
controversial Bill — set to take place on September 11, when all Labour’s
attention will be on the result of the leadership election announced the
following day.
In
the assisted dying debate socialists have largely left the field to liberals,
apart from a couple of thoughtful articles in this newspaper on the subject by Paul Donovan and Ben Parankulangara.
This
has allowed the conversation to be dominated by talk of individual autonomy and
the “right to die” — which as Clifford notes already exists — without
consideration of the social context in which individuals are asked to exercise
that right.
That is a Britain of yawning inequality, led by a government intent on the
privatisation of our public services.
Regular
readers of this newspaper will be aware of the crippling cost and inefficiency
of privatisation, but the issue here runs deeper.
Privatised
services exist for one reason only — to make a profit.
Most
of this country’s social care network is already in private hands and we are
all familiar with the problems this causes: endemic low pay, staff being given
insufficient time to look after patients properly and a price tag that many
families cannot afford, with care home fees running into thousands of pounds a
month.
Such
fees can easily swallow up an inheritance or force the sale of a house.
It is
hardly surprising if older people in need of care often feel guilty about the
impact of their longevity on their children.
Similar
guilt has been widely observed among disabled people worried about the impact
of their disability on their loved ones.
A
government which has demonised people with disabilities — leading to a
sustained rise in hate crime against them — is creating a chilling atmosphere
in which the terminally ill will be asked if it is worth their while to
continue living.
This
has led to a climate of fear and incomprehension around disability.
Paralympic
gold medallist Tanni Grey-Thompson and disabled comedian Liz Carr have both
reported strangers telling them they would rather die than have to live as they
do.
The
advocates of assisted dying have proved surprisingly flexible about the
conditions under which it should apply.
Will
children be allowed to choose to die, as in the Netherlands and Belgium? Are
people with mental health problems, depression or dementia able to make such a
choice?
Is
Lord Falconer right that people who find “loss of independence” “intolerable”
should be helped to kill themselves?
Paying
for people to live in dignity is expensive and unprofitable. It does not make
sense in capitalist terms — one reason why bastions of the right such as The
Economist and The Sun have become cheerleaders for assisted dying.
But
we are not capitalists.
Socialists should think carefully before accepting any
policy that involves killing the weak — even with their apparent permission.
Turn the page, and Ellen Clifford writes:
This summer
Disabled People Against Cuts (DPAC) will be taking on our most controversial
campaign yet as we fight the Assisted Dying Bills going through Parliament.
We
will highlight the severe dangers that the legalisation of assisted suicide
poses.
DPAC is probably
best known for our campaigns against Atos — the company that profits from
pushing disabled people off benefits through punitive assessments — and to save
the Independent Living Fund, a source of essential support for disabled people
with high support needs.
We have always had to resort to direct action to get
attention for our issues which are otherwise neglected by the mainstream.
This time the fight
against legalisation of assisted suicide is even more complicated by the
emotive nature of the subject and the fact that many of our natural allies tend
to assume they are in favour.
We aim through our campaign to bust the myths and
show how legalising will remove, rather than give, choice and add to disabled
people’s oppression.
On September 11 MPs
will get to vote on this controversial subject for the first time in 19 years
when Rob Marris’s Assisted Dying Bill has its second reading in the House of
Commons.
Meanwhile a nearly identical Bill proposed by Lord Falconer is making
its way through the House of Lords.
This parliamentary determination to
legalise assisted suicide tramples all over the views of the people who will be
most affected by legalisation — health workers and disabled people.
The Bill places
decision-making with doctors, yet surveys have shown many would be unwilling to
engage in such practices.
The British Medical Association and Royal Colleges of
Physicians, GPs and Surgeons are opposed to a change in the law, as are 90 per
cent of palliative doctors who specialise in the treatment and care of people
with terminal illness.
Three-quarters of
GPs oppose assisted suicide with reasons given including fears that a change in
the law will result in less focus on investment in palliative care and the
dangers of patients feeling pressured into choosing death.
An “assisted dying”
law sends the message that if you are terminally ill, ending your life is
something that it is appropriate to consider.
Meanwhile it discourages
investment in palliative care and treatment, as evidenced by the case of
Barbara Wagner in Oregon, a 64-year-old diagnosed with metastatic lung cancer.
Her oncologist prescribed chemotherapy to slow cancer growth, reduce symptoms,
and extend her life.
The Oregon Health Plan however would not cover the costs
for her chemotherapy prescription, but sent her a letter saying they would
instead pay for assisted suicide drugs.
Statistics show
that, as with welfare reform or capital punishment, the majority of the public
is apparently in favour of legalising assisted suicide on the grounds they want
to help those in pain.
However, the idea that the Assisted Dying Bill is a
response to pain is false.
Lord Falconer admitted this on BBC’s Daily Politics
when he said that his Bill was not needed to help people in pain — because
“that can be dealt with” — but to assist those who found the idea of losing
their independence and having to rely on other people to be “intolerable.”
In Washington
state, 61 per cent of people who opted for assisted suicide in 2013 said that
being a burden was a reason to end their lives. Similarly in Oregon for the
same year, 93 per cent cited “loss of autonomy.”
Feeling a burden
and lacking choice and control over your own life are concepts only too
familiar to disabled people, and never more so than in the current climate as
the government attacks every area of our lives from income and benefits to the
social care support we rely on, to our human rights.
Proponents of assisted
dying in this country have cited the “unaffordable explosion of dementia and
age-related illness” as reasons to change the law.
Evidence around the world
shows that legalisation for one group leads to a pushing of the boundaries to
bring other groups within its remit.
People with psychiatric conditions,
dementia and newborns with impairments are among those killed by euthanasia in
the Netherlands in increasing numbers year on year.
A “right to die”
already exists in this country. There is no law against refusing medical
treatment that might prolong your life.
Where that happens, doctors have a duty
to ensure that patients receive proper pain relief and other symptom
management.
What doesn’t exist
for ill and disabled people is a right to independent living and to the support
we need to take part in society with the same life chances as other people.
Before we give disabled people assistance to kill ourselves, we want the
assistance to live.
In 1912, Russian
revolutionary Yevgeni Preobrazhensky wrote:
“It seems to me that all suicides
in circumstances of hunger and need have the undoubted character of murder...
The question of a right to suicide will only make sense in a future society
where no material motives for suicide will exist.
Only in a society that has
guaranteed to all its members the means of existence will the question be
appropriate.”
This remains as true today as it was then.
To support the
campaign against legalisation of assisted suicide or put your name to our
statement please contact mail@dpac.uk.net.
We will also be protesting outside Parliament on September 11 and invite
everyone we can to join us.
Ellen Clifford is a member of the national steering committee
at Disabled People Against Cuts.
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